I am Christy, mom to Baylee, age 12, who has CdLS and I’m the author of this blog. I am married to David, and we also have two sons, Lukas, age 16, an upcoming junior in high school and Colton, age 11, a 6th grader.
I do this blog for mainly two reasons–to keep in touch with family and to raise awareness of CdLS. We’ve been doing this CdLS-thing for 12 years now, and today the internet is the first place new families go to find information about this obscure syndrome that their child was just diagnosed with. The information available today is wonderful and the CdLS Foundation always has our families’ best interests at heart. We are sooo lucky to have them. My hope is that our blog can put a real-life face on CdLS and show others that we are still just an average family, with an average life and that for the most part, we’re a pretty happy family. When you first find out your child has CdLS, you wonder if your family will ever be happy or have a life resembling anything close to normal. I’m here to tell you that while it’s not always easy, you can find some normalcy. The most important thing is to have a sense of humor and heed the very simple advice “don’t sweat the small stuff because it’s all small stuff”.