Baylee had an endoscopy procedure today. Reflux is probably the most common problem with Cornelia de Lange Syndrome, and Baylee seems to be one of the lucky ones. She takes Prevacid which seems to keep her symptoms under good control. She had her last endoscopy in August of 2007, and we usually don’t do another for 2 years. However, she’s been gagging lately and has even vomited with the gagging, so her GI specialist thought it would be a good idea to check if there was any damage even though we suspected it might be behavioral.
Her esophagus and stomach looked great, so that’s good news!
Figuring out why she’s gagging herself is another matter. I tend to think it’s stress related, though sometimes that stress seems to occur for her when she doesn’t get her way. Other times it seems to be related to routine disruption. She likes her routine and has a lot of anxiety when she’s in an unfamiliar situation.
In any case, back to the drawing board.
Baylee did great at the hospital, and except for a meltdown when it was time for her to go to the surgical room, she was a model patient.
Baylee is pigging out now and is a happy camper. She couldn’t eat after 6 pm last night, so she’s making up for lost meals now. She had a macaroni and cheese dinner at Hy-Vee for lunch….now she’s inhaling microwave burritos. She wants another one….off to appease my little piglet.