CdLS Conference 2008, Chicago, IL

Baylee & Mike

Originally uploaded by baysmom3

We just returned from the CdLS Conference in Chicago. This year it was a last minute decision to attend. I knew we couldn’t stay away and the chips fell into place for us to get there so how could we say no?

It was productive, informative and lots of fun, but most of all it was an opportunity to feed our spirits. We had grown weary over the past year with Baylee’s behavior issues and most of all, we needed to be in a place where our spirits could be rejuvenated. A place where Baylee is “normal”. A place where we wouldn’t be judged. A place where we can laugh together. A place where others are living our lives.

We’ve come back renewed. We have new ideas on how to help Baylee. Most of all we’ve come back reminded that we aren’t alone. As Julie Mairano said in her speech at the Saturday night banquet….when we see each other, we know we are a part of each other.

How will we wait two more years to feed our spirits again? We’re already looking forward to Dallas 2010!

Thank you to all who made the 2008 CdLS Conference possible! We appreciate you and we are very grateful.



Filed under Cornelia de Lange Syndrome

4 responses to “CdLS Conference 2008, Chicago, IL

  1. Misty (mason's mom)

    loved seeing all of the pictures and wish that I could’ve been there!! so the next one is 2010??? let me start planning now! dallas shouldn’t be too hard to get to hopefully LOL! thanks for sharing all of the photos and your experiences. hope to meet you all in 2010!!

  2. CloverGirl

    Christy, I am so glad you were able to make it to this conference. What a wonderful way to rejuvinate the soul.

    My brother feels the same way when he goes to an event for MPS – he says that it’s so nice to be around other families that have the same struggles as he does. He likes that when he talks to people about their obstacles, they actually know what they’re going through.

    I hope some of the things you learned will benefit Baylee and you!! Enjoy your summer.

  3. Maureen

    It was so neat to finally meet you and your hubby and Baylee! I felt like I knew Baylee even before I saw her just from reading the blog. I felt the same way with Jessica. It was just nice to meet so many kids I’ve read a lot about.

    Joel and I really glad we went. It was a little overwhelming but also incredibly informative and supportive. It was great to be in a place where you don’t have to explain anything. I’m hoping we can make it to Dallas.

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