Monthly Archives: June 2008

Baylee’s sneaky webcam photos!

Baylee is a pretty smart cookie sometimes. She is amazingly computer savvy when she wants to be. She’s figured out how to Skype people when we aren’t looking and obviously, she’s figured out how to use the webcam and Photo Booth software on our iMac as well. She knows how to start up the software and click the little red camera icon to snap the photo. On top of that, she knows how to work the camera! You go girlfriend!

Take a look at all the photos she snapped of herself….some are priceless! LOL Link below–>

Baylee’s Self Portraits



Filed under Cornelia de Lange Syndrome

Skype fun!

If you haven’t tried Skype video chat, you should. We’ve been having great fun with it! Baylee thinks it’s fabulous and she even makes calls on her own when we’re not looking. Though she’s not a great conversationalist with whomever she calls, she looks cute on camera.

We have no family here so Skype is a wonderful way to connect with them. Dave’s sister, Sharon, brother-in-law Daniel and newest nephew, George, live in Melbourne, Australia, and it’s been fun to re-connect with them and watch our new nephew grow….something we’d miss without Skype.

Best thing of all, using Skype to make video calls is free. What did we ever do before the internet?

Leave a comment

Filed under Cornelia de Lange Syndrome

Yumm….summer indulgence


Originally uploaded by baysmom3

Baylee loves food. One skill she’s never lagged in is eating!

She also loves spicy food. Chips and salsa, the hotter the better, are her favorite. Our latest indulgence is also Root Beer in a frosty mug! There’s nothing better to have on a warm summer evening.

We recently discovered Sprecher’s Root Beer at, of all places, Menards (a home improvement store like Home Depot, for those not familiar with it). What an addiction! It was so good I went out and bought beer mugs that we now always keep in the freezer. It reminds me of the days when I was a kid and we’d go to the A&W drive in on a warm summer night, order root beer in their frosty mugs which they’d bring to your car on a tray that clipped onto your car window. Pure heaven. Now I can relive my childhood to its fullest.

Unfortunately, my kids have picked up on the creamy goodness of root beer in a frosty mug and I can’t keep the stuff around more than 5 minutes.

Good news, though, Menards had Sprecher’s in their ad today…a four pack for $2.50! I’m there baby…..gotta love a sale!

Oh, and a shout out to our farmer’s market mate who sells our favorite salsa–If You Dare salsa. Yumm!!! Baylee loves ya!


Filed under Cornelia de Lange Syndrome

Baylee’s favorite summer activity!

Baylee’s pool 1

Originally uploaded by baysmom3

Baylee lives for the pool in the summer! We have a season pass to our neighborhood pool, but sometimes I grow weary of going every single day. We try to go almost every day, but sometimes weather gets in the way, or I just need a break. We like to go in the evenings when the pool isn’t as crowded and the sun isn’t as harsh, but then I have to spend most of the day listening to Baylee hound me–“Pool. Pool! POOL!”.

So I meet Baylee halfway and every summer I get her a plastic wading pool. We fill it up, and she spends the day slashing around in it and taking her “babies” for swims until we go to the pool in the evening. She changes in and out of her swimming suit about 10 times a day….can’t quite figure out why she just doesn’t leave it on. I also had to get a faucet lock for our spigot so she doesn’t run the hose constantly. Our ground is saturated enough with all the rain we’ve been getting….no need to make it any more marshy than it already is. Baylee is definitely not a very “green” child to have around! She’s a master water waster.

As a side note, please keep my hometown of Waterloo/Cedar Falls, Iowa in your prayers with the recent flood devastation there….I’ll take my marshy yard any day.


Filed under Cornelia de Lange Syndrome

Blog Challenge–Summer To-Do List

There are 73 days left of summer vacation!

Our blog challenge is to create a summer to-do list to help provide accountability. Writing down goals is also a good way to ensure you reach those goals, and blogging is the new way to write. The only rule for this blog challenge was to keep the list to five items or less.

Here is my list:

1. Resume a regular running program and run a 5k this summer.

I ran the Chicago Marathon in 2003 and when I toed the start line, I had a feeling that I was probably in the best shape I would ever be in my entire life. A few months later we started delivering papers, and my running drastically tapered off into nothingness. Thankfully hiking papers is fabulous exercise and I’ve been able to ease back into running with little pain. I hope to run the Cornhusker State Games 5k with Colton.

2. Take more photos and make some photo books.

The paper routes robbed me of my scrapbooking habit. I still don’t have the passion I had for the crafty side of scrapbooking, but I’m finding creating books with an online printer is a good compromise. There’s a lot less time involved, and the results are beautiful and professional. I also want to redo our wedding album that Baylee tore apart. One common behavioral quirk of CdLS seems to be a fascination with photos and tearing them apart. Thank goodness for electronic copies of photos!

3. Prepare freezer meals from’s mega menu mailers before school starts.

I can really keep eating costs down by preparing meals ahead of time. It keeps us from eating out too much which has always been our biggest budget buster. I’d like to have at least 50 meals in the freezer before I have to go back to work.

4.  Put photos in my photo collage on my living room wall.

I’m almost embarrassed to admit this, but over a year ago I put up a photo collage set on my living room wall.  Some of the slots still have the photos that came with the frames!  Yes, I have photos of people I don’t even know on my living room wall.  I blame it partly on my laziness, but I think I’m also a victim of the digital age.  I almost never get prints of my photos anymore.  Please hold me accountable for this one.

5.  Paint my downstairs bathroom.

The can of paint has been sitting in there since last summer.  Shame on me.  I can no longer use the “I’m too tired” excuse.

1 Comment

Filed under Cornelia de Lange Syndrome, Running

Lukas and his new car!


Originally uploaded by baysmom3

Every 16 year-old boy wants a car.

Today, Lukas got his very first car! He bought it himself and we must say, he got a nice deal on this sweet little car–a 1996 Pontiac Grand Prix. It’s quite fitting as a Grand Prix was the first car I ever drove, too. I can’t believe my “baby” is driving.

It’s perfect car for him to cut his teeth on. I wouldn’t put much more of a car in a 16 year-old boy’s hands if you know what I mean. Watch out world….Lukas is on the road.

Grandpa will be very proud he bought an American car. 🙂


Filed under Uncategorized