Monthly Archives: August 2007

Baylee Goes To Middle School

Yesterday Baylee started middle school! I was told she had a great day and seemed to adjust well, but she did not eat lunch. I suspect that she was overwhelmed with the new sights and sounds that eating just didn’t seem that interesting. Usually she’s a great fan of school lunch (or just about any lunch in general–Baylee never misses a meal!).

It is always sad to leave familiar faces and places, but change is inevitable. I think she’s going to have some great new adventures!


Baylee before school.



1 Comment

Filed under Cornelia de Lange Syndrome

Colton’s Bad Luck

I always thought it would be Baylee who gave me trouble at the dentist. Colton has unfortunately experienced more dental work in his short life than most people do in a lifetime and has always been very brave. He had a knocked out front tooth reimplanted, numerous cavities filled because of thin enamel, and a root canal on the knocked out tooth (which is unfortunately going to fall out anyway and will someday have to be replaced by an implant). Now he needs four baby teeth removed to encourage an impacted permanent tooth to come in straight so he can have braces put on soon.

So we go to our regular dentist on Thursday to have the baby teeth removed. He gets one removed and decides he wants NO part of having the other three done. He says it hurts, so they numbed him up some more. He still refused to let them finish. No amount of bribing or the promise of money or Wii games does any good. Eventually the situation escalated into meltdown. Lukas said he would have gladly traded a few teeth for a new Wii game, though! (Ok, Luke…methinks you value video games way too highly….)

We did find out a really outspoken drama queen lives within Colton. 🙂

Now we have to make an appointment with a pediatric dentist. We’ll probably have to tank him up on valium ahead of time to make him nice and happy for his second go around with the dentist. *Sigh*

To top things off, he left his bike in the front yard on Thursday night and it was stolen. He was heartbroken. By chance, I found someone on Craig’s List selling the same model of bike, only much newer and nicer for a great price, so we went and bought that today. He came home, rode it for awhile, and locked it up on the porch.


1 Comment

Filed under teeth

And the snowball rolls….

The snowball is still rolling! We are posturing ourselves for some big payments in the next two months. We plan to haul Amex to the curb this month and then plan to pay off our 300m early by the end of September. It will be the last car payment we ever make in our lives! That will leave just two more debts to go. Things will be tight, and it will also mean that our last five farmer’s markets need to be successes. I think they will be if it doesn’t rain and the Husker football games don’t interfere (the stadium is very close to the market).

We all know about best laid plans, so keep your fingers crossed for us. A few prayers would be greatly appreciated as well.

We are also making new transitions here with Baylee. On Monday, Baylee starts her first day of middle school. She’s so tiny, but she’s as strong as 10 men….a little wirey thing she is! I’m sure she’ll hold her own with all the big kids, but she’s been at her elementary school since she was three years old, so it’s going to be very different for her. I hope her experiences there will be as positive as they were in elementary school!

She is ready to go back to school. She’s been very restless and seems bored. She’s obsessed with the water faucet now and could stand there all day and run water if we weren’t constantly shooing her away. She’s ready for summer to be over. Her brothers, though, feel quite differently! I, however, am a bit sick of their bickering. Even if they don’t want to go back, I *need* them to go back….

Leave a comment

Filed under Cornelia de Lange Syndrome, Debt Reduction

Adventures With Colton

Even though this blog is mostly devoted to our experiences with Baylee and CdLS, we do have “adventures” with our sons as well.

Colton is becoming a talented runner, much to his mom’s delight because I need a running partner! Today he ran a one-mile fun run, and ran a 7 minute mile! I don’t know his official place or finish time yet, but he was in the top 10. He hasn’t trained at all, so we had a discussion how training would have possibly put him first, or very close.

A cross country scholarship would be fabulous someday…..and maybe I’ll recruit him for TeamCdLS.


1 Comment

Filed under Running

Baylee’s Combo Procedure

Today Baylee had an endoscopy and good, old fashioned teeth cleaning under anesthesia. Her esophagus looked normal, but we won’t be positive until the biopsy results are back. No irritation or damage is visible, so that’s great news! The Prevacid must be keeping her reflux in check.
Despite the fact that she fights us when we try to brush her teeth, she only had one small cavity. This new dentist thinks he can now clean her teeth in office every six months. That is wonderful news! She is maturing, and while she doesn’t care for having her teeth examined and she is no model patient, the dentist thinks he can work with her! That is fabulous news because she really needs her teeth cleaned more often.

I had to stay home with the boys, so Dave and Grandma went with Baylee to the hospital. Dave said the Valium they gave her before the procedure didn’t even phase her. Hmmm….imagine that! Nothing keeps Baylee down!

She’s running around here now and staying very busy, though she looks pale and tired. We are all happy with the good results.


Filed under Cornelia de Lange Syndrome