When I talk to parents of older children with CdLS, they often tell me how lucky we are to have the internet as a source of support. I’ve been fortunate to have the internet since Baylee was born 10 years ago. It’s always been a part of our life “post CdLS”. I can’t imagine what it would be like to not have daily contact with parents who understand our challenges.
I’m lucky to be a part of a wonderful online support group full of supportive, smart and insightful people always willing to lend an ear or send a cyber-hug to people they’ve likely never met in person. All those people are a gift Baylee has given me.
If you’re a parent of a child with CdLS or even if you’re not, come visit us on CdLS-KIDS….the link is to the right!