Entries Tagged as ‘Cornelia de Lange Syndrome’

July 7, 2008

Blueberry muffins!

Blueberry muffins!
Originally uploaded by baysmom3
I got this recipe from Karen (from Ben & His Brother’s fame). They were yummy! Thanks Karen!  (Please excuse my ugly muffin tin!)
Today Baylee started summer school. It’s only two hours long for three weeks, but with the bus trip, I might get 3 hours of peace and [...]

July 5, 2008

More conference bits

Rick Guidotti & Emma
Originally uploaded by baysmom3
I wanted to put in a plug for the photographer.  Rick Guidotti, that was at the CdLS Conference last week. He had an infectious personality and was able to capture the beauty of our kids all throughout the weekend. For those of us with kids with genetic [...]

July 4, 2008

Happy Birthday America!

Happy Birthday America!
Originally uploaded by baysmom3

We are very grateful to be living in the greatest nation on God’s green Earth!

July 2, 2008

A need for speed!

Baylee has boundless energy so she needs exercise….and LOTS of it. Today we braved the heat and humidity to go for a bike ride. We have some bike trails in our neighborhood that are protected from the streets, so when we are there we can just let her ride on her own as [...]

July 1, 2008

Sometimes our adventures aren’t that fun….

DH’s PDA died today and it’s his brain. He has to have one for his job. We were in the Sprint store checking out the PDA phones so maybe he could combine his two devices. Baylee was in a “mood”…..one of her autistic-like behavior moods. (Just another day like any other….)
Baylee is non-verbal, [...]

July 1, 2008

CdLS Conference 2008, Chicago, IL

Baylee & Mike
Originally uploaded by baysmom3

We just returned from the CdLS Conference in Chicago. This year it was a last minute decision to attend. I knew we couldn’t stay away and the chips fell into place for us to get there so how could we say no?
It was productive, informative and lots of [...]

June 20, 2008

Baylee’s sneaky webcam photos!

Baylee’s sneaky webcam photos
Originally uploaded by baysmom3
Baylee is a pretty smart cookie sometimes. She is amazingly computer savvy when she wants to be. She’s figured out how to Skype people when we aren’t looking and obviously, she’s figured out how to use the webcam and Photo Booth software on our iMac as well. [...]

June 18, 2008

Skype fun!

Dave & Baylee talking to Grandma
Originally uploaded by baysmom3
If you haven’t tried Skype video chat, you should. We’ve been having great fun with it! Baylee thinks it’s fabulous and she even makes calls on her own when we’re not looking. Though she’s not a great conversationalist with whomever she calls, [...]

June 15, 2008

Yumm….summer indulgence

Yumm….
Originally uploaded by baysmom3
Baylee loves food. One skill she’s never lagged in is eating!
She also loves spicy food. Chips and salsa, the hotter the better, are her favorite. Our latest indulgence is also Root Beer in a frosty mug! There’s nothing better to have on a warm summer evening.
We recently discovered [...]

June 15, 2008

Baylee’s favorite summer activity!

Baylee’s pool 1
Originally uploaded by baysmom3

Baylee lives for the pool in the summer! We have a season pass to our neighborhood pool, but sometimes I grow weary of going every single day. We try to go almost every day, but sometimes weather gets in the way, or I just need a break. [...]